Dear Mango
Thank you for your post and welcome to the discussion board.  My name is Suzie, I am an online adviser at Family Rights Group.  The kinship carers forum is for kinship carers rather than parents. We do have a dedicated parents discussion board, and I would ask you to kindly direct any further post to this board.    
You are seeking advice on what a special guardian, who holds a special guardianship order (SGO)  can and cannot do in respect of their role. Your child has been Christened without your consent, your child is known by their  guardian’s surname at school, you are concerned that the guardian’s ill health is affecting their ability to care for your child and that the guardian is encouraging your child to call her ‘mum.’ 
Further, you are seeking advice on whether the guardian is allowed to stop contact with you or whether this needs to be agreed by court. You are considering taking the matter back to court but wanted to seek some support and guidance from the forum before making this decision.   And lastly, you are seeking advice and guidance on how to improve your chances of your child coming back into your care. 
A special guardianship order secures a child’s long-term home with someone who is not their parent. It lasts until the child turns 18. Special guardians gain an enhanced form of parental responsibility. This means they can use their parental responsibility to the exclusion of others. This is explained in section .
 14C of the Children Act 1989
The child’s parent(s) keep their parental responsibility after a special guardianship order is made but special guardians can exercise their parental responsibility to the exclusion of anyone else with parental responsibility. This means that although the special guardian should consult with the parents about important decisions relating to the child, the special guardian can make the final decision. 
However, there are some restrictions on how a special guardian can use their parental responsibility. They will need written consent of every person who has parental responsibility, or permission of the court to change a child’s surname, take the child outside the UK for a period of more than three months, or allow another person to take the child outside the UK for any period. Also, special guardians cannot consent to the child being adopted or placed for adoption (Children Act 1989).
Changing a child's religion could be interpreted as a significant decision that falls under subsection (2)(a) CA 1989 Section 14C meaning it requires the consent of all with parental responsibility, not just the special guardian. If your child was already/previously raised in a Christian tradition a christening may be seen as part of that upbringing. But if the child is being raised in a different faith or no faith, a christening could be interpreted as a change of religion. If would have been a good idea to have sought your consent, if you declined then the special guardian could have consider making a specific issues application. You may wish to seek  advice from a solicitor regarding this.  Please see  
 HERE
 for a link to The Law Society. They have a facility to find a solicitor in your local area.  You will need a child law solicitor, preferably with child law accreditation.  
In respect of your child using the special guardian’s surname at school. It may be that your child is being ‘known as’ the person’s surname because of their emotional needs. Perhaps issues around identity are a concern. However, formal documents such as reports and exam results should be created in the surname on their birth certificate.,
 Child Law Advice – Education  has helpful information regarding this.
With regard to the special guardianship’s health.  If you decide to make an application to court you could raise this as concern, however, many people who experience ill health continue to care for children therefore it will depend on your child’s needs and whether the guardian is able to meet them in the context of her own abilities and that of her support network. I have added a link  
 HERE  to information and guidance to discharge a special guardianship order, the process and what you will need to demonstrate for the court to give Leave of Court (permission) to make the application. 
I think Robin D gives some sound advice and reasoning for children using ‘mum’ or dad’ when speaking about their special guardians.  Whilst it can be difficult and upsetting for birth parents to comprehend, the needs of the child should be paramount and at the forefront of everyone’s thinking.
I have added a link 
 HERE   to Matchmothers.org.uk. They are a charity that offers non-judgemental support and information to mothers apart from their children in a wide variety of circumstances. Please do check out their website for further information and details of the opening times of their support line. 
When there is a special guardianship order in place, contact arrangements should be made in the best interest of the child.  The special guarding is responsible for this, if there is no court order in place. They do not need permission from the courts to make or change arrangements. If you feel that contact is not in the best interest of your child, it would be a good idea to write to the guardian setting out your thoughts and any ideas you have for contact moving forward.  If contact cannot be agreed, you could consider formal mediation (details 
 HERE) in an attempt to agree on contact arrangements in the best interest of your child. However, if this was not successful, you may wish to consider making an application to court for a child arrangements order (details 
 HERE
 ).
I hope you find this information helpful. If you would like to talk to an adviser at Family Rights Group about your situation, please call the freephone advice line on 0808 801 0366, Mon to Fri, 9.30 am to 3.00 pm. If you prefer, you can post back, use our advice enquiry form or webchat. Please refer to our website for further information.
Best wishes, Suzie